Interesting! Well all of it is too much. I hope Boeing can get it's poop in a group - it used to be a great company.
Aren't there more than two whistleblowers? I know of at least one more, so I assumed there were others
M, T, Th, F: work from home, have lunch with my husband (if work schedule allows), play with kids when they get home from school
W: work from home, have lunch with my husband (if work schedule allows), badger kids to do music therapy, play with kids
Sa: business meeting with my dad, play with kids, nap, grocery shopping
Su: play with kids, nap, play with kids
I'm in charge of all adhoc things outside of the house and financial. Husband is a stay at home parent and does all the home stuff.
Probably would be - age plays into it as well. My kids are pretty impacted - minimal language, safety issues, etc. I suspect it can vary widely.
My kids don't have full language capabilities, they struggle with fixations (which means learning has to be customized to their fixations or it won't happen), and they don't have enough situational awareness to be safe.
So, therapies are helpful in getting them enough language to have basic needs met (and minimize behavior issues), practicing doing things they don't prefer for short bursts and learning things like how to behave in a parking lot. We may never get to productivity or self sufficiency - we are focused on staying alive.
Thanks for saying that. 🙂
EDIT: I responded in a way that was not helpful below and I've fixed it now...
I would tear off my right arm to have a robust enough safety net to take care of my kids adequately (and thanks to UHC in that situation, I would live thru it!).
Nothing, back of the napkin math for discussion purposes based on the 2 diagnosisea and doc recommendations we've gotten. Totally can adjust if you have a more accurate number.
So, you totally hit the nail on the head. I couldn't agree more: It is about maximizing resources for overall good. It is just that some groups may not see a qualitative difference in care.
Fair, take that piece out of the equation. Our docs still advised us on 20+ hours of therapy, all of which is costly.
20+ hours of anything is costly if you are paying the therapists appropriately. The issue is that their work is 1:1 and doesn't scale easily.
You are right, which is why I used 15%, instead of 82%.
No, it is from unfortunate personal experience. Special needs families get the short end of the stick in a lot of ways - ours included. Feel free to IM me about it if you want specific anecdotes. After killing myself to get my kids what they need (navigating insurance denials, waiting lists for specialists, underfunded and confusing government programs, lack of childcare, hitting out of pocket maximums year after year, and taking jobs that leave me exhausted and with little family time to pay for it all), I have a huge defense mechanism for anything that sounds like it can quickly and easily solve this kind of situation - because I've been repeatedly shown it is a pipe dream. It doesn't mean UHC isn't a noble cause or the right way to go. But the reality is that it probably won't be much of a qualitative change for families like ours. And it is hard to hear that our experiences and fears are not valid.
I just estimated that 15% need care. So that would leave a huge number that don't - you are right.
EDIT: A quick Internet search says that 82% of autistic adults want or get support, and only 16% are fully employed. 🤷
My kids are real life examples demonstrating that huge investment, while good for the individuals, does not reduce the cost or burden of them to society later in their life. And that very concept could risk society's willingness to pay for any disabled person's full care under universal healthcare.
Man, I wish the hundreds of thousands of dollars of care we got positioned my kids into the workforce. Our reality is that all that while the care did help and make their lives much better - it won't translate into productivity or self sufficiency. 🙁 I am super worried that will practically mean a universal healthcare system in the US limits disability care because it isn't deemed as having a good enough ROI.
I don't know because I'm in the US, but does universal healthcare in other countries cover autism-related therapies and care such as ABA, occupational and speech at the rates recommend by docs (our docs recommended 20+ hours/week - or roughly the cost of $100k/year)? And is that factored into the equation?
I haven't seen the official modeling, just assumptions around the internet. But back of the napkin math suggests that appropriate autism care alone could be quite high: 1/36 of the 341,500,000 American residents have autism. Assuming 15% need care in the range of $100k, would be somewhere around $138b/year for just autism care. Does that seem in line with what you are thinking? Either way, are you able to point me to some of the modeling you have found? I'd love to learn more about how it tactically works.
My son (10 yo) has a few very strong interests that he talks about pretty much nonstop. We haven't discouraged any kind of talking because he was quite delayed. However it has come to my attention that his narrow focus on these topics can annoy his peers at school. I don't want him to feel ashamed about his interests, but I also don't want him to be ostracized at school. I'd really appreciate any thoughts this group may have on how to handle (or not) this situation. TIA!
