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A brain implant changed her life. Then it was removed against her will.

www.technologyreview.com A brain implant changed her life. Then it was removed against her will.

Her case highlights why we need to enshrine neuro rights in law.

A brain implant changed her life. Then it was removed against her will.
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  • This is the best summary I could come up with:


    “There might be some forms of human rights violations that we haven’t understood yet,” says ethicist Marcello Ienca at the Technical University of Munich, a coauthor of the paper.

    The unpredictable nature of the episodes meant that she struggled to live a normal life, says Frederic Gilbert, a coauthor of the paper and an ethicist at the University of Tasmania, who regularly interviews her.

    Ian Burkhart, who received an experimental brain implant to restore movement to his hands following a spinal cord injury, has also experienced feelings of loss.

    “A patient should not have to undergo forcible explantation of a device,” says Nita Farahany, a legal scholar and ethicist at Duke University in North Carolina, who has written a book about neuro rights.

    Several big companies, including Blackrock Neurotech and Precision Neuroscience, are making significant investments in brain implant technologies.

    Leggett has expressed an interest in future trials of brain implants, but her recent stroke will probably render her ineligible for other studies, says Gilbert.


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